DRUKUJ
Request for help
Mikolaj weighs only 19 kg – and taking into account his age (7 and a half) and his birth weight he should weigh at least 20,5 kg. For us this extra 1500 grams is a dream weight. In summer our son weighed more but he lost weight in autumn after another disease – he loses weight every time he is ill, which is very often.
Mikolaj has to gain weight in order to develop, grow, have strength and immunity to fight subsequent infections. The nutritional supplements (Protifar, Fantomalt and Ensure) prescribed at hospital are not refunded and cost respectively 25€, 31€ and 57€ and suffice for one month, though we soon are supposed to give him more. It makes 113€ a month for the nutritional supplements only (8 cans and 60 bottles).
Unfortunately we can only afford medication and vitamins (extra 36,5€ a month) and high calorie diet, i.e. premium products – full fat diary products, high-quality meat, etc. Besides that we have everyday expenses on clothes, shoes, toys.
Because of Mikolaj's disease and intensive care he requires I have to stay at home. I have given up permanent work and I work as a freelancer. Medications, vitamins, nutritional supplements and the rehabilitation equipment are only partly refunded. We have to pay for journey to the clinic and medical appointments at various specialists. My husband's earnings must be divided into five uneven parts (most is spent on Mikolaj, but our oldest son who suffers from diabetes also needs our care and attention).
We, Mikolaj's parents, know that nowadays there is no hope for our son but we believe with our whole hearts that the cure for his disease will be invented in his lifetime. The only thing we can do is to make our beloved Mikolaj live up to this moment but the proper care of him is beyond our financial capabilities. We ask you for support in our fight for the least painful and the longest life for Mikolaj.